Abstract
Background: Young sudden cardiac death (YSCD), often occurring in previously healthy individuals, is a tragic event with devastating impact on affected families who are at heightened risk of posttraumatic stress and prolonged grief and may themselves be at risk of YSCD. Previous research suggests that surviving family members’ psychosocial support needs are often unmet.
Purpose: This study sought to identify how YSCD-affected families experience dedicated community and peer support in light of their psychosocial support needs.
Methods: The study used a qualitative design, employing a thematic analysis of focus group and interview data. Three focus groups and five individual interviews were conducted with affected family members (N=19). The sample was drawn from a UK-based charity, Cardiac Risk in the Young (CRY). Audio-recordings of the focus groups and interviews were transcribed and subjected to thematic analysis.
Results: Three super-ordinate themes were identified: 1. YSCD community support as offering a place of safety, 2. YSCD community support as fostering sense-making, 3. YSCD community support as facilitating finding new meaning.
Conclusions: YSCD-affected families can benefit from access to dedicated community and peer support that offers a safe environment, provides affiliation, understanding and normalisation and enables sense-making and the rebuilding of a sense of self. Dedicated community support can facilitate meaningful re-engagement with life through helping prevent YSCD and through memorialisation and legacy-building to maintain a continuing bond with the deceased. Clinicians need to be aware of the need to incorporate available community and peer support into patient pathways.
© 2020, The Author(s). This is an author produced version of a paper to be published in EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING uploaded in accordance with the publisher’s self- archiving policy. Some minor differences between this version and the final published version may remain. We suggest you refer to the final published version should you wish to cite from it.
Purpose: This study sought to identify how YSCD-affected families experience dedicated community and peer support in light of their psychosocial support needs.
Methods: The study used a qualitative design, employing a thematic analysis of focus group and interview data. Three focus groups and five individual interviews were conducted with affected family members (N=19). The sample was drawn from a UK-based charity, Cardiac Risk in the Young (CRY). Audio-recordings of the focus groups and interviews were transcribed and subjected to thematic analysis.
Results: Three super-ordinate themes were identified: 1. YSCD community support as offering a place of safety, 2. YSCD community support as fostering sense-making, 3. YSCD community support as facilitating finding new meaning.
Conclusions: YSCD-affected families can benefit from access to dedicated community and peer support that offers a safe environment, provides affiliation, understanding and normalisation and enables sense-making and the rebuilding of a sense of self. Dedicated community support can facilitate meaningful re-engagement with life through helping prevent YSCD and through memorialisation and legacy-building to maintain a continuing bond with the deceased. Clinicians need to be aware of the need to incorporate available community and peer support into patient pathways.
© 2020, The Author(s). This is an author produced version of a paper to be published in EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING uploaded in accordance with the publisher’s self- archiving policy. Some minor differences between this version and the final published version may remain. We suggest you refer to the final published version should you wish to cite from it.
| Original language | English |
|---|---|
| Journal | European Journal of Cardiovascular Nursing |
| DOIs | |
| Publication status | Published - 5 May 2020 |
Keywords
- young sudden cardiac death; cardiac arrest; bereavement; peer support; unascertained death; sudden arrhythmic death syndrome