Living with limb loss: Everyday experiences of ‘good’ and ‘bad’ days in people with lower limb amputation

Siobhan Strike

doi:10.1080/09638288.2018.1467502

Living with limb loss: Everyday experiences of ‘good’ and ‘bad’ days in people with lower limb amputation

Siobhan Strike

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Abstract

Purpose: To provide an understanding of the everyday experiences of individuals with a limb amputation. Method: Twenty-two participants (14 female, 8 male) with a mean-age of 42 years (SD = 10 years) were recruited to take part in two focus groups. The participants reported a range of lower-limb amputations (i.e., congenital, acquired, transfemoral, trantibial, unilateral, and bilateral) and on average were 5 years post-surgery (SD = 7 years). Each focus group comprised of 11 participants and was moderated by either the first or second author. The moderator asked participants to discuss their everyday experiences of life with an amputation using Charmaz’s good day/bad day approach. Focus groups were transcribed verbatim and analysed using an inductive thematic analysis. Results: Four themes were identified: pain, organization and planning, the embodied experience after amputation, and interactions with others. Conclusions: These themes provide a key resource for understanding daily fluctuations in physical, social, and psychological functioning. © 2018, Taylor & Francis. The attached document (embargoed until 25/04/2019) is an author produced version of a paper published in DISABILITY AND REHABILITATION uploaded in accordance with the publisher’s self- archiving policy. The final published version (version of record) is available online at the link below. Some minor differences between this version and the final published version may remain. We suggest you refer to the final published version should you wish to cite from it.

Original language	English
Journal	Disability and Rehabilitation
Early online date	25 Apr 2018
DOIs	https://doi.org/10.1080/09638288.2018.1467502
Publication status	E-pub ahead of print - 25 Apr 2018

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10.1080/09638288.2018.1467502

Living with limb loss_AAMAccepted author manuscript, 156 KB

Cite this

@article{0e7f9061d4044b0c9b16f0f4cb0969b3,

title = "Living with limb loss: Everyday experiences of {\textquoteleft}good{\textquoteright} and {\textquoteleft}bad{\textquoteright} days in people with lower limb amputation",

abstract = "Purpose: To provide an understanding of the everyday experiences of individuals with a limb amputation. Method: Twenty-two participants (14 female, 8 male) with a mean-age of 42 years (SD = 10 years) were recruited to take part in two focus groups. The participants reported a range of lower-limb amputations (i.e., congenital, acquired, transfemoral, trantibial, unilateral, and bilateral) and on average were 5 years post-surgery (SD = 7 years). Each focus group comprised of 11 participants and was moderated by either the first or second author. The moderator asked participants to discuss their everyday experiences of life with an amputation using Charmaz{\textquoteright}s good day/bad day approach. Focus groups were transcribed verbatim and analysed using an inductive thematic analysis. Results: Four themes were identified: pain, organization and planning, the embodied experience after amputation, and interactions with others. Conclusions: These themes provide a key resource for understanding daily fluctuations in physical, social, and psychological functioning. {\textcopyright} 2018, Taylor & Francis. The attached document (embargoed until 25/04/2019) is an author produced version of a paper published in DISABILITY AND REHABILITATION uploaded in accordance with the publisher{\textquoteright}s self- archiving policy. The final published version (version of record) is available online at the link below. Some minor differences between this version and the final published version may remain. We suggest you refer to the final published version should you wish to cite from it.",

author = "Siobhan Strike",

year = "2018",

month = apr,

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doi = "10.1080/09638288.2018.1467502",

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journal = "Disability and Rehabilitation",

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N2 - Purpose: To provide an understanding of the everyday experiences of individuals with a limb amputation. Method: Twenty-two participants (14 female, 8 male) with a mean-age of 42 years (SD = 10 years) were recruited to take part in two focus groups. The participants reported a range of lower-limb amputations (i.e., congenital, acquired, transfemoral, trantibial, unilateral, and bilateral) and on average were 5 years post-surgery (SD = 7 years). Each focus group comprised of 11 participants and was moderated by either the first or second author. The moderator asked participants to discuss their everyday experiences of life with an amputation using Charmaz’s good day/bad day approach. Focus groups were transcribed verbatim and analysed using an inductive thematic analysis. Results: Four themes were identified: pain, organization and planning, the embodied experience after amputation, and interactions with others. Conclusions: These themes provide a key resource for understanding daily fluctuations in physical, social, and psychological functioning. © 2018, Taylor & Francis. The attached document (embargoed until 25/04/2019) is an author produced version of a paper published in DISABILITY AND REHABILITATION uploaded in accordance with the publisher’s self- archiving policy. The final published version (version of record) is available online at the link below. Some minor differences between this version and the final published version may remain. We suggest you refer to the final published version should you wish to cite from it.

AB - Purpose: To provide an understanding of the everyday experiences of individuals with a limb amputation. Method: Twenty-two participants (14 female, 8 male) with a mean-age of 42 years (SD = 10 years) were recruited to take part in two focus groups. The participants reported a range of lower-limb amputations (i.e., congenital, acquired, transfemoral, trantibial, unilateral, and bilateral) and on average were 5 years post-surgery (SD = 7 years). Each focus group comprised of 11 participants and was moderated by either the first or second author. The moderator asked participants to discuss their everyday experiences of life with an amputation using Charmaz’s good day/bad day approach. Focus groups were transcribed verbatim and analysed using an inductive thematic analysis. Results: Four themes were identified: pain, organization and planning, the embodied experience after amputation, and interactions with others. Conclusions: These themes provide a key resource for understanding daily fluctuations in physical, social, and psychological functioning. © 2018, Taylor & Francis. The attached document (embargoed until 25/04/2019) is an author produced version of a paper published in DISABILITY AND REHABILITATION uploaded in accordance with the publisher’s self- archiving policy. The final published version (version of record) is available online at the link below. Some minor differences between this version and the final published version may remain. We suggest you refer to the final published version should you wish to cite from it.

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