Long-term follow-up in patients with coeliac disease in the pandemic-era: a view from Sheffield the NHS England national centre for adult coeliac disease

Nick Trott, Suneil A Raju, Anupam Rej, Olivia Hoffman, William Holland, James R Bebb, Leah Seamark, Marianne Williams, Cristian Costas Batlle, Yvonne M Jeanes, Luca Elli, David S Sanders

Research output: Contribution to journalArticlepeer-review


To explore patients' follow-up preferences. Optimal follow-up strategies for patients with coeliac disease remain a subject of debate. Research suggests patients' prefer review by dietitians with a doctor available as required. Patients with coeliac disease under review at our centre, completed a questionnaire assessing their views on what makes follow-up useful based on specific criteria. Bloods tests, symptoms review, dietary assessment, opportunity to ask questions and reassurance. Patients' preferences between follow-up with a hospital doctor, a hospital dietitian, a hospital dietitian with a doctor available, a general practitioner, no follow-up or access when needed were also evaluated. 138 adult patients completed the questionnaire, 80% of patients reported following a strict gluten free diet (mean diagnosis was 7.2 years). Overall, 60% found their follow-up to be 'very useful' valuing their review of blood tests and symptoms (71%) reassurance (60%) and opportunity to ask questions (58%). Follow-up by a dietitian with a doctor available was the most preferred option of review (p
Original languageEnglish
Pages (from-to)158-166
Number of pages9
JournalGastroenterology and hepatology from bed to bench
Issue number2
Publication statusPublished - 22 Dec 2023


  • Celiac disease
  • Gluten-free diet
  • Follow up

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