Long-term follow-up in patients with coeliac disease in the pandemic-era: a view from Sheffield the NHS England national centre for adult coeliac disease

Nick Trott; Suneil A Raju; Anupam Rej; Olivia Hoffman; William Holland; James R Bebb; Leah Seamark; Marianne Williams; Cristian Costas Batlle; Yvonne M Jeanes; Luca Elli; David S Sanders

doi:10.22037/ghfbb.v16i2.2637

Long-term follow-up in patients with coeliac disease in the pandemic-era: a view from Sheffield the NHS England national centre for adult coeliac disease

Nick Trott, Suneil A Raju, Anupam Rej, Olivia Hoffman, William Holland, James R Bebb, Leah Seamark, Marianne Williams, Cristian Costas Batlle, Yvonne M Jeanes, Luca Elli, David S Sanders

School of Life and Health Sciences

Research output: Contribution to journal › Article › peer-review

Abstract

To explore patients' follow-up preferences. Optimal follow-up strategies for patients with coeliac disease remain a subject of debate. Research suggests patients' prefer review by dietitians with a doctor available as required. Patients with coeliac disease under review at our centre, completed a questionnaire assessing their views on what makes follow-up useful based on specific criteria. Bloods tests, symptoms review, dietary assessment, opportunity to ask questions and reassurance. Patients' preferences between follow-up with a hospital doctor, a hospital dietitian, a hospital dietitian with a doctor available, a general practitioner, no follow-up or access when needed were also evaluated. 138 adult patients completed the questionnaire, 80% of patients reported following a strict gluten free diet (mean diagnosis was 7.2 years). Overall, 60% found their follow-up to be 'very useful' valuing their review of blood tests and symptoms (71%) reassurance (60%) and opportunity to ask questions (58%). Follow-up by a dietitian with a doctor available was the most preferred option of review (p

Original language	English
Pages (from-to)	158-166
Number of pages	9
Journal	Gastroenterology and hepatology from bed to bench
Volume	16
Issue number	2
DOIs	https://doi.org/10.22037/ghfbb.v16i2.2637
Publication status	Published - 22 Dec 2023

Keywords

Celiac disease
Gluten-free diet
Follow up

Access to Document

10.22037/ghfbb.v16i2.2637

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9589125/

Cite this

Trott, N., Raju, S. A., Rej, A., Hoffman, O., Holland, W., Bebb, J. R., Seamark, L., Williams, M., Batlle, C. C., Jeanes, Y. M., Elli, L., & Sanders, D. S. (2023). Long-term follow-up in patients with coeliac disease in the pandemic-era: a view from Sheffield the NHS England national centre for adult coeliac disease. Gastroenterology and hepatology from bed to bench, 16(2), 158-166. https://doi.org/10.22037/ghfbb.v16i2.2637

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abstract = "To explore patients' follow-up preferences. Optimal follow-up strategies for patients with coeliac disease remain a subject of debate. Research suggests patients' prefer review by dietitians with a doctor available as required. Patients with coeliac disease under review at our centre, completed a questionnaire assessing their views on what makes follow-up useful based on specific criteria. Bloods tests, symptoms review, dietary assessment, opportunity to ask questions and reassurance. Patients' preferences between follow-up with a hospital doctor, a hospital dietitian, a hospital dietitian with a doctor available, a general practitioner, no follow-up or access when needed were also evaluated. 138 adult patients completed the questionnaire, 80% of patients reported following a strict gluten free diet (mean diagnosis was 7.2 years). Overall, 60% found their follow-up to be 'very useful' valuing their review of blood tests and symptoms (71%) reassurance (60%) and opportunity to ask questions (58%). Follow-up by a dietitian with a doctor available was the most preferred option of review (p",

keywords = "Celiac disease, Gluten-free diet, Follow up",

author = "Nick Trott and Raju, {Suneil A} and Anupam Rej and Olivia Hoffman and William Holland and Bebb, {James R} and Leah Seamark and Marianne Williams and Batlle, {Cristian Costas} and Jeanes, {Yvonne M} and Luca Elli and Sanders, {David S}",

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Trott, N, Raju, SA, Rej, A, Hoffman, O, Holland, W, Bebb, JR, Seamark, L, Williams, M, Batlle, CC, Jeanes, YM, Elli, L & Sanders, DS 2023, 'Long-term follow-up in patients with coeliac disease in the pandemic-era: a view from Sheffield the NHS England national centre for adult coeliac disease', Gastroenterology and hepatology from bed to bench, vol. 16, no. 2, pp. 158-166. https://doi.org/10.22037/ghfbb.v16i2.2637

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AU - Hoffman, Olivia

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AU - Bebb, James R

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