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Long-term follow-up in patients with coeliac disease in the pandemic-era: a view from Sheffield the NHS England national centre for adult coeliac disease

  • Nick Trott
  • , Suneil A Raju
  • , Anupam Rej
  • , Olivia Hoffman
  • , William Holland
  • , James R Bebb
  • , Leah Seamark
  • , Marianne Williams
  • , Cristian Costas Batlle
  • , Yvonne M Jeanes
  • , Luca Elli
  • , David S Sanders

Research output: Contribution to journalArticlepeer-review

Abstract

To explore patients' follow-up preferences. Optimal follow-up strategies for patients with coeliac disease remain a subject of debate. Research suggests patients' prefer review by dietitians with a doctor available as required. Patients with coeliac disease under review at our centre, completed a questionnaire assessing their views on what makes follow-up useful based on specific criteria. Bloods tests, symptoms review, dietary assessment, opportunity to ask questions and reassurance. Patients' preferences between follow-up with a hospital doctor, a hospital dietitian, a hospital dietitian with a doctor available, a general practitioner, no follow-up or access when needed were also evaluated. 138 adult patients completed the questionnaire, 80% of patients reported following a strict gluten free diet (mean diagnosis was 7.2 years). Overall, 60% found their follow-up to be 'very useful' valuing their review of blood tests and symptoms (71%) reassurance (60%) and opportunity to ask questions (58%). Follow-up by a dietitian with a doctor available was the most preferred option of review (p
Original languageEnglish
Pages (from-to)158-166
Number of pages9
JournalGastroenterology and hepatology from bed to bench
Volume16
Issue number2
DOIs
Publication statusPublished - 22 Dec 2023

Keywords

  • Celiac disease
  • Gluten-free diet
  • Follow up

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